When Angels Fly ~ ExcerptSeptember 29, 1990 – Saturday
Eli and I were both up most of the night. Eli’s fever jumped up even higher to 106.0 F. This is now Eli’s second night of ice blankets in an effort to make his temperature go down. The lab called up to the floor very early this morning. Eli had taken a very sharp drop in his Hgb (from 8.3 to 6.0), his Hct (23.9 to 19), Platelets dropped from 54,000 to 26,000 all in 24 hours. Eli was transfused with two units of packed red blood cells. Eli’s heat rate was going up to 215 at times; I did call and inform Henry of what was happening and the seriousness of how ill Eli really was.
For the first time, Henry didn’t abuse me on the phone; he just asked questions about Eli. I told him it might be a good idea to head back to Denver. It was only after several calls on updates on Eli that Henry considered coming back to Denver. The Denver metro area finally found a donor for Eli for more platelets and th
When Angels Fly ~ ExcerptJuly 23, 1990 – Monday - Today is Eli’s fourth full day at home!
The morning went great and Eli tried to eat some Fruity Pebbles for breakfast like Noah was doing. After breakfast, I took the boys up to the local hospital as Eli was to have lab work done for EU doctors. The lab tech wanted to poke Eli but his veins were poor and I told him I would draw from his Hickman like I did in the hospital. The lab tech looked rather dubious at me and then gave me the needles and syringes I wanted; I drew off waste blood then the blood for the tubes which I handed to the tech, and then I immediately gave Eli the “waste” blood back to him. This was how EU liked to do on the children as they need their blood and if one is good and fast with drawing labs, there’s no reason not to give the waste blood back.
The boys went with me to see my lawyer, Mr. Troy, and it looks like the divorce is not going to be anytime soon. My lawyer bill is huge, but it seem
When Angels Fly ~ ExcerptMarch 27, 1990 – Tuesday
When I woke up this morning Eli was still asleep. I found his beautiful blonde hair all over his pillow and bedding. I simply bawled for a long time. Then I cleaned up most of his hair and threw them away, forgetting to keep a lock. I wanted to clean his hair up before Eli woke up to see all of it spread out over his pillow.
After Eli woke up, I combed his hair and almost all the rest of his hair fell out. I clipped the remaining hair on his head, but it was too few that I doubt counting them would give me a number close to thirty.
When Angels Fly ~ ExcerptJune 4, 1990 – Monday
I awoke as usual around 6 AM and by 8 AM I had all of Eli’s cares completed. After taking Eli off his TPN we just watched some TV and waited for the doctors to get to Eli’s room. I wanted to hear Dr. Landon’s thoughts on the CT scan of Eli’s chest and also the most recent MRI that was done. Dr. Landon changed Eli’s TPN mixture to incorporate more lipids for healthier growth.
By mid-morning I took Eli to feed the frogs for the last time. They are in the schoolroom and the teacher, Kristy Davis, will be taking them home with her for the summer. While there Eli painted a picture and I will be framing it later for my wall. Right before lunch time Dr. Landon and the Blue Team came to Eli’s room. Eli now has both an ENT and Dental consults. There may be more consults before the day ends. Kristy Patterson came by to do some discharge planning after this coming chemo session. Eli only took bites and sips for lunch and I was
When Angels Fly ~ ExcerptJuly 7, 1990 – Saturday
Later in the evening I found out that Gavin had come to the hospital last night to see if I was with Eli. I found this out after Eli’s night nurse came on duty. Oh well; he saw I was indeed here. I am sure that angered both him and Henry. I had Eli’s nurse come back to Eli’s room after he told me his head hurt real bad so she could get him some pain relief. The Tylenol did not work and Eli told me, “You gotta make me feel better.” It was all I could do not to cry. I wish I could perform miracles but I cannot so I prayed and told Eli we would ask the doctor for stronger medicine for his headache. Eli has not complained of a headache since the middle of March – why does he have one now, and a bad one at that? I prayed to God for relief.
Just Ponder This.............Just A Thought To Ponder: One five year old little boy knew all about Heaven, and wanted to go to Heaven, at such a young age rather than stay in the security of his mother's arms like most little children would rather do. Just ponder this...
When Angels Fly ~ ExcerptApril 6, 1990 – Friday (ELI’S 5TH BIRTHDAY, 4th week of treatment)
Henry called at 7:30 AM to greet Eli on his birthday, but Eli was in the bathroom and he wasn’t able to take the call. Henry got angry and started yelling again so I did what I always do whenever he loses his temper — I hung up on him.
After telling my son “happy fifth birthday” and flushing and Heparin locking both ports of Eli’s Hickman, we proceeded to radiation oncology.
Eli was in for a surprise. His nurse Vickie had a birthday present for him and the technicians had the radiation table decorated with balloons and toys. There was even a banner.
I took photos of Eli’s delighted face with my camera and hoped that my shots would come out well. The staff also took a few Polaroid’s.
After Eli and I got back to his room, Rita immediately hooked up Eli to his hydration fluids. As soon as she was done, a fellow nurse, Maci, together